ME/CFS International Awareness Day Quotes and Messages…
Every year on May 12th, World Chronic Fatigue Syndrome Awareness Day is organized in the memory of Florence Nightingale on her birth anniversary. From 1857 till her death in 1910, she suffered from a fatigue-related illness similar to Chronic Fatigue Syndrome (CFS) or Fibromyalgia. The modern-day goal of this day is to create awareness among people about the causes, symptoms and preventive measures related to this chronic medical condition.
May 12 is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) International Awareness Day. We stand together with the millions of people who suffer from ME/CFS and other chronic illnesses. ME/CFS is a serious, long-term illness that affects multiple body systems. People with this illness suffer from inability to perform usual activities associated with extreme fatigue, post-exertional malaise or PEM, sleep problems, and other problems with thinking and concentrating, pain, and dizziness.
While MECFS is the preferred name by many, this disease has also formerly been known as systemic exertion intolerance disorder (SEID), chronic fatigue immunity deficiency syndrome (CFIDS), or post-viral fatigue syndrome (PVFS).
Centred on ME Awareness Day on May 12th, ME Awareness Week is a time when everyone we know puts all their valuable energy into telling the world that M.E. is a real and physical disease.
BLUE faces, BLUE hair, BLUE nails, BLUE themed raffle, BLUE profile photographs on social media, BLUE tongues, BLUE balloons tied to garden gates, Bake sales, plant sales, tea parties, supermarket and shopping centre collections, walks, concerts, orienteering, fun days… of perhaps a virtual BLUE Sunday.
May 12 ME/CFS International Awareness Day Quotes and Messages
Wear blue to raise awareness
Real People. Real Disease. Real M.E. Making the invisible visible.
MECFS is not ‘just fatigue’. It is a serious complex organic multisystem disorder.
Please do all you can to protect yourself and one another from avoidable life changing illnesses.
One of the things that keeps people with MECFS in the shadows is the invisibility of our illness.
Due to MECFS I lost the ability to travel, discover new countries, sites, cultures, explore life and its beauty to the fullest. I yearn for that.
Me/cfs makes your body feel heavy and painful like you have lead all over your body. It’s pressure and weight and pain and it’s exhausting
I’m one of millions missing from our lives due to Myalgic Encephalomyelitis, each with their own challenges & losses Unlike Covid lockdowns, the lockdowns we have dealt with for years due to ME continue
ME/CFS needs to be acknowledged as a serious disease, causing significant impact on health and QoL, not only of the individual but also of their family. Education for healthcare practitioners must be updated to reflect this.”
Imagine having an illness where on awareness week/month you put energy into educating and getting more people to understand a little, which ends up making you more sick by having done too much with your poorly body, and… no one listens anyway.
I went missing in 2008. I’ve never got my life back. I don’t work, date, go to weddings/funerals, see friends. My muscles & brain don’t work. The nerves in my hands are shot by falling over so much. Everything hurts. There is no help for me on the
M.E. can be an incredibly lonely and isolating illness but it doesn’t always need to be, as there are many ways in which friends and family members can potentially give their love and support.
This short film explores what M.E. is, and suggests ways people can help their friend or family member who is living with the illness.
Every individual who has M.E. will have their own unique experience of the illness, so it’s best to talk to them to find out what might benefit them.
The ME Association is here to support people through all stages of their illness because we desperately want to see everyone get the help they need and, through research, help to develop an effective treatment and one day even a cure.